This year’s theme “With Us, Not For Us,” emphasises people with Down Syndrome’s right to make their own decisions. On Monday 16th October, together with the New Zealand Down Syndrome Association, Firstport is hosting two events in the EASIE Living Centre. Session one is available online.
Join us for one or both events and a light lunch thanks to New Zealand Down Syndrome Association.
Session one: Exploring Supported Decision-Making
Time: 12 to 01:15 PM NZT
Explore who might want supported decision-making, how to make it happen and how choice and control align with the Enabling Good Lives Principles (EGL). Speakers are:
Erika Butters - Senior Advisor for The Personal Advocacy and Safeguarding Adults Trust
Peter Allen - Disabled Person and a Representative from Mid Central Regional Leadership Group for EGL.
Dr Carey-Ann Morrison - Family Member on the NEGL and Chief Executive of SAMS
Apryl Cadman (Legal Executive from Manawatu Community Law) will also be available to answer any questions regarding legal capacity at the end.
Meeting ID: 851 2228 3664 Passcode: 116094
1.15 pm-2.00 pm -This will be a chance to mingle over a light lunch provided courtesy of the NZDSA
Session Two: Working “With Us Not For Us" shows a collection of good life stories demonstrating the importance of supported decision-making offline at EASIE Living.
Time: 2 to 3.30 PM NZT
You will hear from community members and whanau Vincenzo Vaccarino (Vinnie), Lily, Noah, and Isaac about what supported decision-making means to them. Some of these stories will be shared via video, others will be in person.
We will also hear what supported decision-making means to family members and professionals working within the Enabling Good Lives and legal systems.
You can sign up to other awesome conference events through on the New Zealand Down Syndrome Association website.
Or you can download the World Down Syndrome virtual conference schedule using the links below.
- Week 1 schedule (PDF, 67 KB)
- Week 2 schedule (PDF, 72 KB)
- Week 3 schedule (PDF, 71 KB)
- Virtual conference full schedule (PDF, 78 KB)
Can't make it to our hui? Here are a list of things you can do to celebrate World Down Syndrome Month.
Wear CRAZY socks to raise awareness.
Did you know chromosomes are shaped like socks, and individuals with Down Syndrome have an extra chromosome? Wearing crazy and fun socks is one of the fun ways we celebrate World Down Syndrome Month.
Educate your co-workers, friends, and whānau
Don't be afraid to share your story. People still believe so many myths and misconceptions about Down syndrome. We highly recommend diving in and educating your close circle about Down syndrome.
New Zealand Down Syndrome Association has plenty of resources to support you.
Make it known that it is World Down Syndrome Month. Share with your followers what #WithUsNotForUs means for you.
Last updated on Tuesday, 10 October 2023